Tuesday, March 31, 2009

Thanks everyone

Well, some good news. I'm being transferred to the dialysis center at St Vincent's hospital. This is a much nicer place where I can lie down and sleep instead of sit in a plastic, worn out lazyboy recliner. It is also quiet and we are cared for by RN and LPNs instead of medical technicians. I am very grateful for this development.

Someone I know online committed suicide on Sunday. Please pray for his family.

Thank you for the prayers. I pray for all of you daily. What a wonderful connection that is. 

Thanks again to Janis for sending me the St Jude card. It will take a miracle for me to live out the year. My friend Larry believes in miracles and prays for one every day. Thank you Larry.

Love you all, Roseann

Saturday, March 28, 2009

OCICBW Friends

It seems we are surrounded by pain sorrow right now. I just want you all to know you're in my prayers. Love, Roseann

Sunday, March 15, 2009

A request

Does anyone have a spare St Jude medal they would be willing to share? I feel hopeless and while I've never been one to turn to saints I think I need to now. Please let me know.

Love and peace, Roseann

Thursday, March 12, 2009

A little good news for a change

One of the reasons UAMS turned me down for transplant is the fact that I've had gastric bypass surgery. Gary got online last night and did some research that shows gastric bypass patients actually live longer with a kidney transplant than the general population. Did UAMS just miss those studies? I think they are only interested in low risk transplants because it keeps their numbers looking good. Better numbers, better chances of research grants. Way of the world, huh?

I'd like to call on my blogger friends to help if they can or if they have time to find any research on gastric bypass and kidney transplant. Good or bad it will help make our case.

I will fight as long as God gives me breath and strength and the will to go on. I slept almost 20 hours yesterday
which rested my soul and my heart. I will not give up. I will not go gently until God tells me it is time.

I love you all. You sustain me. You inspire me. I pray for you all daily. Until Traci sings I'm not giving up.

Love, Roseann

Tuesday, March 10, 2009

Dead Woman Walking

Dear Ms. Matthews,

As per our conversation, you were presented at Kidney Conference on 2/27/09. The committee has decided that you have mulitple medical problems that would not me conducive to a kidney transplant. You have recurrent infections. You have had gastric by pas surgery that could make the metabolism of your post transplant meds very tenuous and that is one of the most critical points for the success of a transplant. Finally with you past history of multiple malignancies including malignant melanoma this could recur after a transplant secondary to immunosuppressive drugs.

It is always difficult to have to relay this type of information. You do have the option of consulting another transplant center. There are other possible centers in the area that are most likely to accept higher risk patients. They are Baptist Medical Center in Little Rock AR, Baylor University in Dallas , TX, Methodist in Memphis, TN and Barnes Jewish Hospital in St. Louis, Mo.

Thursday, March 5, 2009

Wednesday, March 4, 2009

Sigh

UAMS informed me that I am not eligible for a kidney transplant. I have so many health issues that need to be resolved that they won't even consider me right now. I just keep moving forward and hoping for the best.