Sunday, April 19, 2009

About time!

Apr 19th, 2009 | RALEIGH, N.C. -- Federal law prevents hospitals from revealing information on a patient, but hospital gowns occasionally allow a patient to reveal too much of themselves.

The News & Observer of Raleigh reports that a North Carolina State University design team is working to end the issue of partial disclosure.

It's not the first time someone has tried to conceal what is sometimes exposed because of the gown's flimsy fabric and loosely tied open back. But North Carolina State textile design professor Traci Lamar has the financial backing and research to develop a restyled garment that could finally be practical for hospitals across the country.

Lamar has been working on a solution since November 2006. Researchers hope to have the product ready for market in about two years.

Saturday, April 18, 2009

When you come out of the desert

We all spend time in the desert. We have spiritual, financial, health, family deserts and they are all lonely and hard places to be. We're never there forever. Things change, life moves, healing of different sorts occur and we always seem to find ourselves back in the garden somehow.

I've been thinking about Jesus taking the disciples to the garden during the last of their time together. He knew they were going to hit some long, hard desert time soon so he took them to a place of peace and beauty. 

I feel that I've just entered the garden gate. I feel the Spirit leading me, putting people in my path for a reason, giving me hope and strength. Everyone's garden is a little different and the path to the gate is different. A week ago I could barely walk to the end of the hall and now I can move around a lot more. I can fix my own coffee. Big deal you say? Yeah it is.

When you're in the desert it feels as though you'll never get out. If you pay attention, you're out and life feels fresh again.

I love you all and you are in my prayers, Roseann

Thursday, April 16, 2009

Mama bird

Patricia took this picture of a mama Blue Jay who built her nest on some lights by my carport. Thought you'd all enjoy it!

Patient Packet

Well, my new patient packet arrived today. I was just getting ready to open it when Gary had to leave for work. I decided not to look at it until he gets home. He remembers things better than I do and plus I'm just nervous about it. Maybe that is silly but I'll just feel better to go through it when he is with me. Have I told you what a great guy he is?

I talked to a police community crime abatement officer about my warring neighbors. I told him I had no intention of getting anyone in trouble. I asked if someone could just talk to them about their behavior and how it disturbs the neighborhood. Apparently they have people who do that sort of thing which is a great service. Sometimes a warning is enough.

Gary is off the next two days and we're going to drive down to the neighborhood park and go for a walk. I'll use my walker and sit down when I get tired. I think if I can just move a little more it will help me build up my strength. Also, some sunshine will be nice. I wish I could take the doggies but I think Gary "walking" me will be enough to handle.

You're all in my prayers and I love you, Roseann
I just want to say I love Mimi. 
Here's a link to Barnes Jewish transplant program. I'm posting this to remind people to be an organ donor. Also, think about being a live donor for a kidney patient. Only a quarter of the people waiting on a kidney will get one this year. There is a recent study, posted on this blog, that shows live donors live normal lives and have normal life spans after surgery. 

Tuesday, April 14, 2009

Random thoughts about today

I got a phone call from a sweet friend today. She hasn't called much lately because for awhile I was just too tired to talk. On dialysis days my throat gets very dry and I'm hoarse and can't speak very well. She called at a perfect time today and it was fun to talk to her.

I've also been talking on the phone with my friend John in St Louis. It is so fun to talk to him. We haven't met F2F but I feel like we've known each other forever.

A friend from my old parish contacted me. She found my blog and read through most of it. She told me that St Pete's had been praying for me for months but she didn't know why. She offered to help any way she can. I was so moved.

I'm pretty emotional these days. I'm so excited about the prospect of going to Barnes Jewish. I have to chill on that. I was convinced I would get transplanted at UAMS so I'm working on just being calm and letting things go at their own pace instead of feeling rush, rush, rush. I also cry at the drop of a hat. West Wing is being rerun on Bravo and I record it on DVR. The episode called Two Cathedrals makes me just sob. So of course, I watch it a lot. I miss sitting in the pew and hope I can get there soon.

I just want to say I love Traci the Red. Not only does she look awesome in the Aretha hat she visits and comments a lot. I'm still laughing over the angel sin accountants. 

Really I love all of you. You're in my prayers and I'm grateful for MP's prayer request updates. Knowing a specific need helps me focus. I love your pets too. Especially the dogs. 

Monday, April 13, 2009

Not feeling so hot today

For the last three days it has become harder to breathe again. The nurses at my dialysis center are wonderful and know what to listen for. They will probably send me for another chest xray. I'll let you know how things go.

Update: turns out things are okay just some fluid on my lungs that came off in dialysis. Major good news is I'm going to try for Barnes Jewish hospital in St Louis. My donor is cool with that too. Even better my friend John Dawid lives there and is going to be our resident angel. I feel so blessed.

Sunday, April 12, 2009

Neighborhood Easter war

I woke up before sunrise and was having a blessed and calm Easter morning. 2 hours later my crazy neighbors are out in the middle of the street having a full-on war. Mostly screaming and cursing and waving of sticks and bats.

Now I don't want to call, wait I DO want to call these douche bags trailer trash. This is a nice neighborhood and they need to move to a trailer park.

I had to call 911 and a patrol car came out and broke it up.

Don't mess with my peaceful Easter please!

p.s. Enjoy this giant Lego Jesus!

Saturday, April 11, 2009

Easter Miracles

I haven't taken the St Jude medal off since I got it and I seem to have a little more energy every day.

My cousin Lee came over today with a prayer shawl she knitted for me. As she was getting ready to tie off the last bit of fringe she looked down at the floor and there was a sterling silver charm of the Bible so she put it on the last fringe. She has no idea where it came from and knows it is not something she bought. 

Patricia came over with Easter dinner for me and Gary. Lemon-rosemary roasted chicken, roasted baby potatoes, a medley of zucchini, red and green sweet peppers.

We feel so blessed and thank all of you for your prayers and kind comments.

Love, Roseann

Beef Stew and LornaDoones

I met Patricia online through MP and Mimi's blogs. I can't remember who got in touch first, I just remember being so happy to see another Arkansan. I got to meet Patricia yesterday when she brought a meal for me and Gary. Beef stew, rolls, salad, blackberry cobbler and LornaDoone cookies. Even better, she's a fellow LornaDoone fan!

We had a really great visit. We realized we know lots of the same people. Got to tell some stories and I have a new friend. How cool when a friend moves from cyber to F2F!

Thanks for everything Patricia. Gary also sends thanks and says your beef stew is one of the best he's ever tasted. 

Thursday, April 9, 2009

Why Gay Marriage is Wrong

I don't know who wrote this, I stole, I mean borrowed it from a Facebook poster.

WARNING: Not for the sarcasm impaired.

1) Being gay is not natural. Real Americans always reject unnatural things like eyeglasses, polyester, and air conditioning.

2) Gay marriage will encourage people to be gay, in the same way that hanging around tall people will make you tall.

3) Legalizing gay marriage will open the door to all kinds of crazy behavior. People may even wish to marry their pets because a dog has legal standing and can sign a marriage contract.

4) Straight marriage has been around a long time and hasn't changed at all; women are still property, blacks still can't marry whites, and divorce is still illegal.

5) Straight marriage will be less meaningful if gay marriage were allowed; the sanctity of Brittany Spears' 55-hour just-for-fun marriage would be destroyed.

6) Straight marriages are valid because they produce children. Gay couples, infertile couples, and old people shouldn't be allowed to marry because our orphanages aren't full yet, and the world needs more children.

7) Obviously gay parents will raise gay children, since straight parents only raise straight children.

8) Gay marriage is not supported by religion. In a theocracy like ours, the values of one religion are imposed on the entire country. That's why we have only one religion in America.

9) Children can never succeed without a male and a female role model at home. That's why we as a society expressly forbid single parents to raise children.

10) Gay marriage will change the foundation of society; we could never adapt to new social norms. Just like we haven't adapted to cars, the service-sector economy, or longer life spans

Wonderful news

Apr 9th, 2009 | NEW YORK -- A New York City organ damaged on Sept. 11, 2001, will be played on Good Friday for the first time since the terrorist attacks.

The 1,680-pipe organ at St. Paul's Chapel near ground zero has undergone a complete cleaning. Two-and-a-half gallons of dirt have been removed and two bent pipes replaced.

The organ will reverberate through the chapel during a special open rehearsal Friday morning. It also will be played during two Easter morning services.

The instrument was built in 1964 by the Buffalo, N.Y., Schlicker Organ Company. It is housed in an elaborate mahogany case built in 1802.

St. Paul's Chapel is an annex of Trinity Church. It served as a place of refuge for recovery workers at the World Trade Center site.

Crooks and Liars

Great blog, check it out.

Dave Brubeck, one of the all time greats

Apr 9th, 2009 | WILTON, Conn. -- Dave Brubeck's son says the jazz pianist and composer is looking forward to returning to the road for some shows after being hospitalized for a viral infection.

Chris Brubeck says his 88-year-old father is recovering at his Wilton, Conn., home, and hopes to be well enough to perform in a few weeks. He was released from Norwalk Hospital last week.

I actually got to hug him at the New Orleans Jazz & Heritage Fest in the '70s. A sweet and happy man who loves his fans. He played with his sons who all have major chops.

Wednesday, April 8, 2009

Prayers needed

Gary has injured his shoulder and is in quite a bit of pain. He went to the doctor yesterday and tomorrow will have an MRI. This is a critical situation for us. If he can't work at Whole Foods we lose our insurance. He works another job as an internet programmer for a company in Austin and they haven't been able to pay him since February. This economy is sucking hard.

Please pray that he can work at least light duty. He has vacation hours built up and if he needs to rest the shoulder give him the good sense to take some time off. He is saving all his vacation time now to help me.

I hate to say it but we really need help. I wrote my priest today and asked if there are some people who will bring us meals. Frankly, the house can go to hell, I just want him to be okay. Please pray that some kind souls will help us over this hump.

It is embarrassing to admit this but I have to share the truth with you all.

Love, Roseann

Tuesday, April 7, 2009

Traci's cat waits at the window for her

Friends and illness

I've noticed some of my friends have faded away since I've been ill. I know that illness can frighten people and they don't mean to be distant, they just don't know what to do. Then I have other friends who show up and clean my house for me or bring a meal or just send a card or email. I love the virtual friends I've made on OCICBW and Facebook. 

One of my long-time friends will give me a kidney if things change and I can have a transplant. This guy has already changed my life in more ways than I can describe. A zillion years ago he sat me down in from of a Mac and learning to use the computer changed my life.

Be gentle with your friends. Forgive them when they just don't know what to do. Pray for them. If for some reason they drop you like a hot rock pray for them anyway. Try to remember we're all one, we're all the Son. 

Monday, April 6, 2009

Things in my heart

All day I've been thinking about going to the Keys with Traci and having big, fat cheeseburgers in honor of our fathers. I might even sneak a sip or 2 of beer.

I've been thinking about how much I love St. Sue and her friendship. She is an awesome lady.

I got my St Jude medal from Anonymous and it is wonderful and hanging around my neck.

I've been thinking about MP and how goofy and then profound he is. I wish he was a priest at my church.

I've been thinking about my 4-leggeds and my OCICBW friend's 4-leggeds. I think God really outdid it with the creation of dogs. I love cats too but dogs rule.

Then I got sleepy and took a nap. Naps are one of the best things ever.

Love and prayers to you all, Roseann

Sunday, April 5, 2009

And now for something completely diferent

No communion today

No one remembered to bring me communion today. Not an LEV or a deacon or one of the priests. I don' t know if I messed up and was supposed to call the church or something. When I was last in the hospital 2 of our priests promised me at different times that they would bring me communion. I feel kind of sad that no one remembered and even worse if I was supposed to do something and failed to do it.

I decided to not pout and picked up the phone. One of our priests is on his way over. He was mortified because he thought I'd been assigned to someone else. So bless him, in the middle of the afternoon he is on his way.

Last Holy Week?

Maybe this is my last Holy Week on this earth. Who knows? There are so many people praying for miracles for me that I find myself without fear. At least for this moment.

I want to thank everyone who write about their 4-leggeds. If Heaven isn't full of critters God and I will have a serious talk. :-)  I pray for all your pets, especially those getting old or sick. My Tinker is getting old and I tried to make her promise she wouldn't go before me but she was too interested in what was left on my plate to really pay attention.

My friend John and I talked about what would happen to our critters if something happened to us. I know Gary will take care of mine but I also know they are far more attached to me than to him. My prayer is that they would adapt and love him like they love me. Which might annoy him a little, especially my shadow Belle. She is relentless about being in a lap.

MP wrote on his blog, Jesus was ultimately betrayed by the world and he needed God to rescue him. This is also the life experience of us all. Right now my younger brother won't talk to me. He has a "perfect" life. Beautiful wife and children, beautiful house, plenty of money to shield it all. Everyone healthy and happy. I'm the wrench in that perfection. He says he loves me and prays for me but he will not talk to me no matter how I reach out to him. I hope that God rescues us both soon from this betrayal. I'm not the easiest sister to have. I know this will shock you but I have strong opinions and I call them as I see them. Younger brother is on what I consider the "dark side." Bush and Cheney were great. Waterboarding is not torture and so what if it is. His son goes to Pat Robertson's law school. Seriously, all dark side stuff to me. The thing is I love him and would walk through fire and broken glass for him. Anytime. Please pray that we reconcile and in that process I learn to just shut up and let him be who he wants to be. I would wash his feet.

I think Holy Week is working me already.

Saturday, April 4, 2009

Feeling Gratitude

I won't be able to attend Palm Sunday services this year. I just don't have the strength. In spirit I will be with the people of Grace and St. Stephens in Colorado. Tomorrow they get their church building back. 

Thursday, April 2, 2009

Words fail me...

Listen, I was thinking on my way to work today that you deserve a much nicer medal than the one I have so I detoured though another little town on my way home... it's just one little town after another here in swamp land... and I went to see the religious man down at the religious shop. He had a great St. Jude. I knew he would. It's gold over silver which he was pretty impressed about. I don't know. But, it's pretty and it feels good in the hand. So I got you that one. I think you'll like it. Now, the religious man is very religious... Catholic... Republican... pro-life... the whole nine yards. So, he was careful to inform me that the medal had not been blessed and that I should rush right out to my priest and have it blessed before I gave it to anyone. I thanked him profusely, like I always do. But, I don't have a priest and if I did I wouldn't ascribe any magical blessing powers to them anyway. What I do with my own medals is leave them in front of an icon of our blessed mother and ask her to take them directly to Jesus and have them blessed by him. So, that is what I have done with yours. I'll leave it here all night and pack it up and mail it in the morning. You can see it in the snap below. The medal is in the little maroon box.

If you need any other religious stuff just let me know. I'm not kidding, this guy can get anything. ANYthing. And it is a privilege for me to be able to do something for you.

My prayers for you continue.

Warm Blankets

Warm blankets are one of the true pleasures of life. Climbing into the dialysis bed and being covered with warm blanks is enough to make a grown man weep. Except MP who would just sniffle a bit.

Thanks for all the great comments and feedback. Thanks to Lindy who is sending me a St Jude medal. I will keep the card in my BCP and wear the medal all the time. Sometimes I take my BCP to dialysis and read prayers and psalms. What a wonderful book to have. Once a gazillion years ago when I was young and healthy a Roji from a Buddhist monastery in Japan came to visit a local college. He wanted to meet with my priest and she asked me to join them. I gave him a copy of the BCP and he gave me a fan he had calligraphied with a saying of the Buddha. He told me what it said but now with  rampant CRS I have no clue what it says. It is one of the things I want thrown in my box before I am cremated.

Gary says I want too much in that box. I want my old, best wiener dogs collar. I want a picture from our wedding and I want a picture of my mommy and daddy. Is that weird? When one of my friends died a few years ago we filled his coffin with KitKat bars. Hey...he liked them a lot! No one had discussed it, there was no plan, just as we passed his coffin in went a KitKat.

When Gary's uncle died they put his domino set in his coffin. The double-six was in his hands. I had never met this man and when we got to the wake Aunt Martha said, "Let me introduce you to Doug." Well, this was a new one for me. I mean, what do you say? "Hi, nice to meet you. Hope you enjoy the after life." I'm really no good in situations like that.

I want to send special greetings today to John, Janis and Larry. You sure have helped me with all the broohaha this week. Thanks for having my back. I love you.