Tuesday, March 10, 2009

Dead Woman Walking

Dear Ms. Matthews,

As per our conversation, you were presented at Kidney Conference on 2/27/09. The committee has decided that you have mulitple medical problems that would not me conducive to a kidney transplant. You have recurrent infections. You have had gastric by pas surgery that could make the metabolism of your post transplant meds very tenuous and that is one of the most critical points for the success of a transplant. Finally with you past history of multiple malignancies including malignant melanoma this could recur after a transplant secondary to immunosuppressive drugs.

It is always difficult to have to relay this type of information. You do have the option of consulting another transplant center. There are other possible centers in the area that are most likely to accept higher risk patients. They are Baptist Medical Center in Little Rock AR, Baylor University in Dallas , TX, Methodist in Memphis, TN and Barnes Jewish Hospital in St. Louis, Mo.

33 comments:

Joan said...

Ro~~ I'm so sorry. Please seek another opinion. Prayers ascending.

Grandmère Mimi said...

Roseann, I am so sorry. What rotten news. I'll continue to pray for you and Gary that you find peace in the midst of the impact of the very bad news. My dear, I am so, so sorry. Words fail for now, so I'll pray. I'll be back in touch.

And I'll do a post on my blog. Folks are very concerned about you and want to know. I wish I could give them better news.

Jane said...

Have missed you on FB - now I know why. Ok, let me just phrase my thoughts in a "Jane" sort of way. That sucks. Big fat sucks. And I wouldn't blame you if you opened the door and screamed "Life Sucks" out the front door.
And I agree, that life doesn't give you more than you can handle thing....well, I have been there, and YES HE DOES.
I will think incredibly positive thoughts for you. Please know that if you want an ear to listen to you cry, whine or scream, we can pretend we're in the yard on Midway and you can do all of the above. Hugs, Jane

motheramelia said...

I am very sorry as well. Please know that I'll also be praying for you. We have a healing Eucharist on Wednesdays and you will go on the prayer list.

renzmqt said...

Prayers and hugs, not necessarily in that order...

Ann said...

Prayers surrounding you as you walk this path.

Two Auntees said...

I am so sorry. You will continue to be in my prayers.

Kirkepiscatoid said...

Well, Jane beat me to the "this really sucks" comment. So I'll say it really bites.

Right now, I know there is no comfort at the moment. I am so sorry. There's just prayer, and I'll do my part.

suzanne said...

My heart aches for you and Gary.
However I agree with Joan when she suggests another opinion. Dr. K can help you with that.

Love, Hugs, and Prayers ascending for you both.

Love,

Sue

it's margaret said...

Oh God.

You are in my prayers.

Paul said...

Words fail. Prayers continue.

Anonymous said...

Rose, I am so sorry. I am sure I can't imagine how horrible you feel.
You and Gary are in my thoguhts and prayers
Live,
Kelley

Tracie the Red said...

Oh dear...

Well, that's just one person's opinion. Get a second or third one. :nods:

I'm the fat lady and I'm not singing yet. ;)

susan s. said...

Oh, Roseann, I am so sorry. It really sucks. You will still be on our prayer list at my church and certainly in my prayers. And I agree, get another opinion.

Love for you and Gary.

Susan

Lynn said...

Roseanne, you are in my prayers.

I do hope you have the resources to do an evaluation at one of the higher risk centers. They would be better able to care for you, you know. And if the organ match is extremely good, they will be willing to risk having you on a lower dose of immuno-suppressent meds.

And yep - this s*cks.

Sara said...

Roseann, add one more in the "this really sucks" column. Of course prayers continuing. Get that 2nd opinion.

MarkBrunson said...

Oh, Roseann.

I don't have words for this . . . I'm just so sorry. Still, the second opinion seems the best option.

Jane R said...

Dear Roseann,

Thinking of you and sending prayers and love...

Song in my Heart said...

Still praying for you.

Erika Baker said...

Oh my dear friend, that's such sad news. Will you try another transplant centre?
Love, hugs and prayers

Frair John said...

I'm very sorry.

I have nothin to say but that, so I'll pray.

David said...

Roseann
you have my love and prayers
and yes my tears at this news of no comfort
to everything else, i'm now asking that you'll find another answer, another resource

David@Montreal

Göran Koch-Swahne said...

Prayers ascending! ... and yes, do have that second opinion!

Pat Klemme said...

God's peace be with you and Gary as you adjust to this latest news. Keep on keepin' on, Roseann. Let your heart be guided by the Holy Spirit and follow your path accordingly. If re-evaluation at one or more of the recommended transplant centers feels right, then faithfully step into that choice next. You continue to be in my prayers whatever choices you make.

Juanuchis said...

Scream to the hills. Scream so loud I can here it all the way here in West Virginia.

Then get as many opinions as it fecking takes.

Meanwhile, you're ever in my prayers.

Love,
Janis

Arkansas Hillbilly said...

Roseanne,

I am so sorry. I wish I knew what else to say. You continue to be in our prayers.

Anonymous said...

Roseann, I am so very sorry that you were given such news. Please try again. Prayers are ascending from Oklahoma. Marilyn

toujoursdan said...

Keeping you in my thoughts and prayers too!

Anonymous said...

Roseann, I have just found your blog and glad I did. I am in the mood for rice pilaf and a real good pork loin that only you can do. I know you are not at your best but you must remember it is all about me !! :) I know you just about choked on that one... What are friends for. I would say to you the things that everyone else is saying but that is not what is needed. We need to take a trip to Lolly Bottoms and find some baby lima beans and tomatoes and maybe a little bit of lettuce. The old days were great and so are you. I think of you and Gary often and wish I could do more, but you know you are with me in my thoughts. I hope to make it to Little Rock soon but we put Mother in Hospice today in the hospital. She has been there for 4 weeks but you know she and I are at peace with all that is going on. I think of all the fun things that have happen in my life and that is how I make it through each day. A lot of my best and funny thoughts are of you and Gary and all of the trouble you got me into knowing that I could not resist... Kiss the weiners and know I think of you often.....

Love You Lots,
Stits

DanG said...

Words fail me. SE Oregon continues praying for you.

JCF said...

Roseann, you were prayed for tonight at mass.

Do NOT give up---may the Holy Spirit empower you to FIGHT ON!!!

Douglas Ward said...

Baptist, Baylor, Barnes, Memphis, or elsewhere... If it's possible, let me know.

Ahmed said...

Prayers surrounding you as you walk this path.