Thursday, July 10, 2008

Kidney Transplant Update

I saw the nephrologist today.

The kidney transplant preparation has to start now. Both kidneys have to be removed. This came as a shock to me...PKD isn't just cysts on the kidneys (which never stop growing.) It causes cysts in the liver and colon. The biggest shocker is it can cause brain anuerysms too.

It has to be done w/in the next 24 months or, well, it is going to be really bad. The thought now is to get the transplant before dialysis is necessary. Transplants can also be done w/out the heavy steroids like prednasone. I'm really grateful for that.

I'm beyond emotional at this moment. I want to cry but I don't want to break down in front of Gary. He's got enough on his heart and mind without me being a big crybaby. He wants to be evaluated as a possible donor. I don't mean to be maudlin, I just believe deeply he'd be better off w/out me. I'm not suicidal and I plan to fight. I believe I've put him through more than he deserves though.

I'm on all kinds of new drugs now including Procrit at $700 a shot. That'll be $1400 a month just for Procrit. Hopefully insurance will cover it. We won't know until it is submitted.


Grandmère Mimi said...

Roseann, I offer you my love and my prayers. I'll pray for both you and Gary. If you break down in front of him, don't fret. It's not as though he doesn't know that you're upset. Gary wants to give you one of his kidneys. Do you think he would feel better off with you gone? I don't think so.

Prayers for help from your insurance company for the drugs, too. I pray for donors sooner rather than later.

Would you like me to post at my blog for prayers?

it's margaret said...

Dear Roseann,

You will be in our prayers.

Many blessings.

FranIAm said...

Many, many prayers for you!

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